TY - JOUR
T1 - Editor's Choice – Vascular Registries Contributing to VASCUNET Collaborative Abdominal Aortic Aneurysm Outcome Projects
T2 - A Scoping Review
AU - VASCUNET AAA Registry Collaborators
AU - Pouncey, Anna L.
AU - Meuli, Lorenz
AU - Lopez-Espada, Cristina
AU - Budtz-Lilly, Jacob
AU - Boyle, Jonathan R.
AU - Behrendt, Christian Alexander
AU - Mani, Kevin
AU - Pherwani, Arun D.
AU - Altreuther, Martin
AU - Beiles, Barry
AU - Cassar, Kevin
AU - Coelho, Andreia
AU - Cromwell, David
AU - Fitridge, Rob
AU - Grima, Matthew Joe
AU - Khashram, Manar
AU - Koncar, Igor
AU - Lareyre, Fabien
AU - Lattmann, Thomas
AU - Laxdal, Elín Hanna
AU - Lazaris, Andreas M.
AU - Moulakakis, Konstantinos G.
AU - Setacci, Carlo
AU - Slobodan, Tanaskovic
AU - Szeberin, Zoltán
AU - Venermo, Maarit
AU - Waton, Sam
N1 - Publisher Copyright: © 2024 The Authors
PY - 2024/8
Y1 - 2024/8
N2 - Objective: Vascular surgery registries report on procedures and outcomes to promote patient safety and drive quality improvement. International registries have contributed significantly to the VASCUNET collaborative abdominal aortic aneurysm (AAA) outcome projects. This scoping review aimed to outline the national registries in vascular surgery that currently participate in the VASCUNET collaborative AAA projects. Methods: A scoping review of all published VASCUNET AAA studies and validation reports between 1997 and 2024 was undertaken. A survey was conducted among representatives of the international vascular registries contributing to VASCUNET collaborative AAA projects. Results: Currently, vascular registries from 10 countries (Australia, Denmark, Finland, Hungary, Iceland, New Zealand, Norway, Sweden, Switzerland, and the UK) contribute to the current VASCUNET collaborative AAA project, of which eight have national coverage. In the past, three countries (Germany, Malta, and Italy) have participated in previous VASCUNET AAA projects, and a further three countries (Serbia, Greece, and Portugal) have planned participation in future projects. External validity is high for all current registries, with most reporting rates of > 90%. The majority have internal validation processes to assess data accuracy. VASCUNET mediated validation has also been performed by the consortium for five countries to date (Hungary, Sweden, Denmark, Malta, and Switzerland), for which a high degree of external and internal validity was identified. Most registries have established mechanisms for data linkage with national administrative datasets or insurance claims datasets and contribute to quality improvement through regular reporting to participating centres. Conclusion: National vascular registries from nations participating in the VASCUNET collaborative AAA projects are largely comprehensive, with high case ascertainment rates and good quality data with internal quality assurance. This provides a template for new registries wishing to join the VASCUNET collaboration and a benchmark for future research.
AB - Objective: Vascular surgery registries report on procedures and outcomes to promote patient safety and drive quality improvement. International registries have contributed significantly to the VASCUNET collaborative abdominal aortic aneurysm (AAA) outcome projects. This scoping review aimed to outline the national registries in vascular surgery that currently participate in the VASCUNET collaborative AAA projects. Methods: A scoping review of all published VASCUNET AAA studies and validation reports between 1997 and 2024 was undertaken. A survey was conducted among representatives of the international vascular registries contributing to VASCUNET collaborative AAA projects. Results: Currently, vascular registries from 10 countries (Australia, Denmark, Finland, Hungary, Iceland, New Zealand, Norway, Sweden, Switzerland, and the UK) contribute to the current VASCUNET collaborative AAA project, of which eight have national coverage. In the past, three countries (Germany, Malta, and Italy) have participated in previous VASCUNET AAA projects, and a further three countries (Serbia, Greece, and Portugal) have planned participation in future projects. External validity is high for all current registries, with most reporting rates of > 90%. The majority have internal validation processes to assess data accuracy. VASCUNET mediated validation has also been performed by the consortium for five countries to date (Hungary, Sweden, Denmark, Malta, and Switzerland), for which a high degree of external and internal validity was identified. Most registries have established mechanisms for data linkage with national administrative datasets or insurance claims datasets and contribute to quality improvement through regular reporting to participating centres. Conclusion: National vascular registries from nations participating in the VASCUNET collaborative AAA projects are largely comprehensive, with high case ascertainment rates and good quality data with internal quality assurance. This provides a template for new registries wishing to join the VASCUNET collaboration and a benchmark for future research.
KW - Abdominal aortic aneurysm
KW - Registries
KW - VASCUNET
UR - https://www.scopus.com/pages/publications/85196368301
U2 - 10.1016/j.ejvs.2024.04.037
DO - 10.1016/j.ejvs.2024.04.037
M3 - Article
C2 - 38697257
SN - 1078-5884
VL - 68
SP - 152
EP - 160
JO - European Journal of Vascular and Endovascular Surgery
JF - European Journal of Vascular and Endovascular Surgery
IS - 2
ER -