The Icelandic genome debate

Gísli Pálsson, Paul Rabinow

Research output: Contribution to journalReview articlepeer-review

Abstract

Three of the central issues in contemporary debates about the commodification of the human body are those of property, ownership, and access. This article uses the case of the central medical database on Icelanders to discuss contesting claims about the ownership of the human genome, with respect to the rapid development of biotechnology, human genome projects and DNA collections. We emphasize the contrast between commercial and communitarian perspectives and to illustrate our argument we explore debates about the Icelandic database. These debates have been intense, focusing on a range of issues, including ethics, academic freedom, public health and, last but not least, the control and ownership of medical records, genetic information and genealogical data. This article should be seen primarily as an anthropological commentary on ongoing developments.

Original languageEnglish
Pages (from-to)166-171
Number of pages6
JournalTrends in Biotechnology
Volume19
Issue number5
DOIs
Publication statusPublished - 1 May 2001

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